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Epilepsy and SUDEP

Many doctors are reluctant to talk about SUDEP, or provide information about epilepsy in general. If you have a doctor that is not forthcoming, honest, and willing to educate himself, find another doctor. The links below have many resources to help you educate yourself, find support, and get involved.

The Epilepsy Foundation

The Epilepsy Foundation, a national non-profit with nearly 50 local organizations throughout the United States, has led the fight against seizures since 1968.

Danny Did Foundation

Founded by Chicagoans Mike and Mariann Stanton in January 2010 after the death of their four-year-old son Danny, the Danny Did Foundation works toward its mission to prevent deaths caused by seizures.

Child Neurology Foundation

The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support of those dedicated to treatments and cures.

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